FOXG1 Research Foundation will host a charity golf tournament on Friday, March 25 at the Silverado Resort and Spa in Napa, California. The inaugural event, sponsored by American Airlines and Taysha Gene Therapies, will raise funds for accelerating research to cure FOXG1 Syndrome and other brain-based disorders. Interested participants can register online at https://foxg1research.org/events/2022/3/25/foxg1-charity-golf-tournament-napa.
The four-person golf scramble event – taking place at Silverado Resort’s premier PGA golf course – will start at 12:30 p.m. with team registration and check-in beginning at 11:30 a.m. The post-golf reception will follow at 5:30 p.m. and will include heavy hors d’oeuvres, wine tasting, a silent auction and more. The registration fee is $350 for golf and reception; $125 for reception only. All proceeds go to the FOXG1 Research Foundation. Silverado Resort is offering discounted room rates for event participants.
“We are in an era of medicine where curing or circumventing disease will be done by intervening at the genetic level. This is the future of medicine and The FOXG1 Research Foundation is funding the brightest minds in this space, ensuring rare genetic diseases benefit from this medical revolution,” said Nasha Fitter, CEO and co-founder of FOXG1 Research Foundation. “With enough support to fund the leading neuroscientists, we stand a real chance to change the face of this devastating disorder for children today and in the future, and while doing so we are also contributing massively to science for many brain disorders affecting millions.”
FOXG1 is a rare neurodevelopmental syndrome that greatly impacts brain development. Most children with FOXG1 syndrome cannot walk or talk. FOXG1 is a transcription factor gene that is linked to many related brain disorders.
